Sunday, April 22, 2012

Decision on 2nd opinion

So, after discussing things with Tish and my primary care doctor, Tish and I decided to get a second opinion.  Of course, the toughest part is dealing with the insurance company.  I did an online search for chiari specialists in the Oklahoma City area, and found a doctor at Oklahoma University Medical Center.  The next step was that I went to the Tricare website to see if he was a network provider, and of course they didn't list him.  So, I decided to give him a call anyway and ask his office directly.  Turns out they do accept Tricare, so I'm not sure if they charge more than your random strip mall neurosurgeons that they sent me to or what, but for some reason they don't like to let people know he takes Tricare.  Anyway, after talking with my PCM, she got me a referral to the specialist....which turns out to be a pediatric neurosurgeon that also specializes in adults with chiari and syrinxes.  So, my first appt with Dr. Mapstone is this coming Tuesday.  Not sure what I'm hoping for....On one side, he might say I don't need the surgery right away, but then I would still risk further injury or deterioration.  On the other side, if he agrees that I need surgery, I'd have a second option for the surgery, and a chiari specialist at that.
My headaches have been getting more frequent, luckily the severity is still pretty low, about a 3 on the pain scale, and 800 mg of motrin usually takes care of it pretty quickly.  They are occurring about 4-5 days a week now, sometimes multiple times a day.  Still no concerns with numbness or tingling other than 2-3 times since my diagnosis.  My current NS thinks those instances are unrelated to the chiari, so we will see what the specialist has to say.  I'm sure I'll post some more after the appointment on Tuesday.  I'll let you all know.

1 comment:

  1. Will be thinking of you on Tuesday... I hope it is a comforting visit, however it turns out... Love and prayers sent north from Texas. Love you Michael. Give yourself, Tish, and the kids a hug from us. ;)

    ReplyDelete